What is Epidermolysis bullosa?

Epidermolysis bullosa (EB) is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DEBRA provides specialist EB nursing, funds extensive medical research and provides counseling, welfare, respite and advocacy.

What does the name mean?
The skin is made up of a number of different layers. The outer is called the epidermis; the inner layers are the dermis. "Bullosa" is simply the name for a blister and "lysis" means breakdown. Hence, Epidermolysis bullosa means the breakdown and blistering of the epidermis.

What are butterfly children?
The youngest sufferers are called butterfly children because their skin is as fragile as a butterfly's wing.

What's the charity of GFL2010 for?
All donations to our Charity will go directly to DEBRA Switzerland.
DEBRA offers help to butterfly children, their parents and nursing personnel.
With your donation to our charity you support directly the butterfly children in Switzerland and the EB research.

How can you effectively contribute to the GFL charity?
The GFL 2009 OC will have a charity box. Any amount will be greatly welcomed. For other means of support and information check the website of DEBRA Switzerland.
Your contribution is of vital importance.

Thank you!

TIP: By the end of your ski week you might consider donating your used ski pass in the collection boxes.